Ubiquitous wearable and mobile technologies generate vast amounts of data from sensors and self-logging applications. This data creates opportunities to better understand people’s behavior and inform research on intimate topics such as menstruation. However, in design and HCI research, reconstructing the context in which data was collected and understanding the lived experience behind the data often requires the active participation of people. In this paper, we augment the concept of data donation beyond data collection to explore the possibilities of actively engaging data donors in the (intimate) interpretation of their data. Specifically, we define and implement a menstrual logs data donation journey. We received data sets from 35 donors over five weeks, 13 of whom participated in reconstructing the context of their data. We translate our experience into a conceptualization of designerly data donation around the data, data donors, and data receivers, which we discuss along with its implications

Link to the NordiCHI’22 conference website

https://doi.org/10.1145/3546155.3546646

Cite Bibtex
    @inproceedings{10.1145/3546155.3546646,
        author = {Gomez Ortega, Alejandra and Bourgeois, Jacky and Kortuem, Gerd},
        title = {Reconstructing Intimate Contexts through Data Donation: A Case Study in Menstrual Tracking Technologies},
        year = {2022},
        isbn = {9781450396998},
        publisher = {Association for Computing Machinery},
        address = {New York, NY, USA},
        url = {https://doi.org/10.1145/3546155.3546646},
        doi = {10.1145/3546155.3546646},
        abstract = {Ubiquitous wearable and mobile technologies generate vast amounts of data from sensors and self-logging applications. This data creates opportunities to better understand people’s behavior and inform research on intimate topics such as menstruation. However, in design and HCI research, reconstructing the context in which data was collected and understanding the lived experience behind the data often requires the active participation of people. In this paper, we augment the concept of data donation beyond data collection to explore the possibilities of actively engaging data donors in the (intimate) interpretation of their data. Specifically, we define and implement a menstrual logs data donation journey. We received data sets from 35 donors over five weeks, 13 of whom participated in reconstructing the context of their data. We translate our experience into a conceptualization of designerly data donation around the data, data donors, and data receivers, which we discuss along with its implications.},
        booktitle = {Nordic Human-Computer Interaction Conference},
        articleno = {8},
        numpages = {12},
        keywords = {Data-Centric Design, Menstrual Tracking, Data Donation, Self-Tracking;, Intimate Data, Personal Data},
        location = {Aarhus, Denmark},
        series = {NordiCHI '22}
    }